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Learning Health Systems Research: Engaging Patients And Families To Improve Hospital Care Delivery And Experiences

New research finds that positive impacts on patient outcomes and experiences can take up to 17 years to be translated into clinical practice. The Learning Health System (LHS) model has been created to bridge the gap between research and clinical delivery systems. One of the foundations of a Learning Health System is the engagement of patients and families to guide research. This presentation will give an overview of the Learning Health System model of research. We will also provide real-world examples of how patients and families have been engaged within Learning Health System research in hospital settings. 

  • Gain insight into the Learning Health System model of research including its rationale and core principles 

  • Understand how patients and families can inform Learning Health System research supporting patient and family-centered care 

  • Learn and discuss how patients and families can be incorporated into Learning Health System research at your medical center


Martie Carnie headshot
Martie Carnie, Patient Advocate; Senior Patient Engagement Advisor; Co-Chair of the Brigham and Women’s Hospital Patient and Family Advisory Council Steering Committee
James Harrison headshot
James Harrison, Assistant Professor in the Division of Hospital of Medicine at the University of California San Francisco (UCSF)
Martie Carnie headshot
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