Friday, October 2, 2020
Choose Between Two Interchangeable Tracks
Examine the Needs of the Patients You Serve
9:15am How Human Centered Leadership Supports Exceptional Experience
Understand how human-centered leadership links to exceptional experience
Examine the individual masteries and organizational infrastructure that supports a human-centered culture
Explore how to embed human-centered leadership principles at every level of your organization
10:05am Uncovering and Interrupting Bias in Ourselves and Others: Moving toward Inclusion and Equity
Define privilege, equity, bias and microaggressions/microinequities
Describe how implicit bias works in everyday life, including healthcare
Take away tips and debiasing techniques for addressing implicit bias
10:55am The Immigrant Experience in Healthcare: Patient and Provider Perspectives
Dr. Elisa Tristan-Cheever, MPH, Manager, Patient Information & Volunteer Engagement, Cambridge Healthcare Alliance
Nitzali Rivera, Licensed Practical Nurse, Cambridge Health Alliance
Learn about unique challenges to receiving healthcare as an immigrant to the US
Identify concrete changes to make to engage this patient group
Understand the importance of cultural-linguistic education for providers and the collaboration with community partners
2:45pm Why We Say "Person Living With ...": The Power of Words in Patient Empowerment
John-Manuel Andriote, Author and HIV Advocate, Psychology Today Blogger
It’s important that the first people with HIV-AIDS were openly gay men. They understood the power of words to hurt—or heal. “We are not AIDS ‘victims,’” they insisted. “We are ‘people with AIDS.’” Their demand for an active role in every decision affecting them launched the patient empowerment movement that continues to transform medical care and research.
- Identify the "Denver Principles" and their role in launching the people with AIDS (PWA) self-empowerment movement
- Explain the significance of "framing" the story of one's medical diagnosis--or other traumatic life event--as an affirming tale of resilience and survival rather than victimization
- Explain the role of words and language in constructing a story that can help heal from trauma
- Describe how the involvement of HIV and other patient advocates has revolutionized medical care and research
11:45am Changing the Conversation and Outcomes in Our Approach to Chronic Pain
Highlight challenges clinicians face in management of chronic pain
Explore sustainable, human-centered approaches to non-opioid pain management
Discuss how a different conversation about pain can empower patients, increase hope, and enhance clinician wellbeing
2:00pm Bridging Personal Convictions and Organizational Strategy to Create Excellence in Person-Centered Care
There is a big difference between individuals’ personal commitment to the values of person-centered care and an effective strategy to deliver it. And yet, the delivery of person-centered care requires both. That’s because creating a person-centered organizational culture requires a sense of purpose that transcends individuals’ personal convictions. In this session, participants will be introduced to Person-Centered Care Certification® and the Fellows in Person-Centered Care Program, which together provide a systematic and operational framework for creating a purpose-driven culture by 1.) creating structures to promote co-design; 2.) developing processes that re-orient care delivery processes to individualize care 3.) implementing practices that maximize opportunities for inclusion and engagement and 4.) developing professional competencies that emphasize quality, compassion and partnership. The session will explore how adopting a person-centered approach organizationally creates opportunities for healthcare professionals to be the kind of caregivers they entered the profession to be, which ultimately creates better outcomes for patients, families and communities.
- Explore ways to preserve individuals’ personal commitment to delivering an exceptional healthcare experience for all while also strengthening the broader organizational culture of person-centered care.
- Examine practical strategies for anchoring a change effort through structure, standardized practices and practical tools.
- Understand the connection between leadership support of patient and family engagement, and staff involvement in actions and strategies that operationalize this commitment.
Patient Experience in Clinical Research: How to Harness Large Health Systems
9:15am The Value of Embedding Research into a Large Health System
Jeff James, CEO, Wilmington Health and Founding Member of Innovo Research
Discover the role of clinical research in a value driven health system
Appreciate the value of collaboration across health systems to improve the research process
Discover the benefits to patient engagement of a robust research program
10:05am Transforming the Patient’s Clinical Trial Experience
Kelly Johnston McKee, MS, Sr. Director of Patient Recruitment and Registries, Metidata
Discover how adding choice to clinical trials can improve clinical trial patient experiences
Understand why both high touch and high tech solutions are needed to improve clinical trial patient experiences
9:00am Chairperson's Opening Remarks
10:55am Technology-enabled Clinical Trials; Revolutionizing the Patient Experience
Dr. Leonard Sacks, MD, Associate Director for Clinical Methodology, Office of Medical Policy, Center for Drug Evaluation and Research, FDA
Electronic communication platforms and digital health technologies including biosensors have the potential to revolutionize the experience of patients participating in clinical trials. Using verified and validated digital health technologies, patients can be monitored continuously providing a comprehensive picture of the performance of new medical products, and they may be spared the burden of repeated visits to study sites.
- Understand the role of electronic communication platforms and digital health technologies in medical product development
- Discover key issues in evaluation of digital health technologies
- Recognize considerations in designing decentralized clinical trials
11:45am Learning from 5 Million Clinical Research Participants: #FindtheFive & the Power of Measuring Patient Experience
Irfan A. Khan, MD, CEO, Circuit Clinical
More than 5 million Americans have participated in clinical research in the last decade. Yet we know almost nothing about their experience. What could we learn from them if we asked?
#FindtheFive - the first social media experiment to catalog the experience of clinical trials participants is now underway and early results suggest transparency and peer-to-peer support will transform how people find and choose clinical research.
- Define the demographics and scope of cohort of past clinical research participants
- Review methodologies we've used traditionally for defining, measuring, and optimizing for patient experience
- Explore early results from #FindtheFive and what opportunities may be found in measurement of patient experience