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How to Navigate an Incurable Genetic Disease as a Young Adult

Tuesday | September 21, 2021

2:30 PM

Seth learned at the age of 15 that his mother was diagnosed with the rare, neurological, genetic disease known as Huntington’s Disease (HD). Knowing he had a 50/50 chance of inheriting the gene, he decided to go through genetic testing at the age of 20 and found out he tested positive for HD. Learn how Seth has been navigating and mentally preparing for life with a rare disease as he races against the clock. 

  • Learn what resources are available throughout the genetic testing process 

  • Understand the unmet needs of young adults living with a rare, genetic condition 

  • Discover how to communicate a diagnosis, treatment plan, and clinical trials to the patient and their family


Seth Rotberg

Moderator 1


Grand Ballroom A

Education Credits Available

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